The required £56 447.66 was transferred from the money raised for Katya K. (7 years old, from Moscow region, who has Apert’s syndrome) in accordance with Rusfond's ' Organisation of donations from both individual and legal entities to provide targeted assistance to those who are in strong need , with the help of Media and the Internet' programme. Rusfond UK raises money to cover the living costs in London, household needs and essential medical supplies such as catheters.
Vitalik was born with a rare disease called the Prune-Belly syndrome. The skin looks wrinkly and the stomach muscles are missing, the structure of his urinary tract is impaired. Right after birth, my son was diagnosed with a respiratory insufficiency, underdevelopment of the kidneys, reverse reflux of urine and a lack of urethra. We have already been diagnosed with Chronic Renal Failure Stage 3. The main danger here is that his kidneys might fail altogether and he will only be saved by a kidney transplant. For now, doctors are treating Vitalik only with medication, however they predict that when he gets older, he will have a transplant. We heard that similar conditions are being successfully treated at the hospital in London and decided to reach out to them. Doctors in England are prepared to carry out a thorough medical assessment and surgery, during the course of which they will strengthen the bladder wall muscles and the аbdominal cavity, as well as creating a special stoma that will allow catheterisation. This surgery will help to improve my son’s health and quality of life. Please help us to save our boy!
Lidia Malofeeva, Leningrad region.
Paediatric urology consultant at the Great Ormond Street Hospital, Professor Imran Mushtaq (London, United Kingdom): “We have helped many children suffering from the Prune-Belly syndrome. The boy will need to be examined by the pulmonary diseases specialist, nephrologist and a urologist. Then, a surgery will follow to create stomas that will allow to empty the bladder. The child will also need an abdominalplasty that will help to strengthen stomach muscles, the walls of the bladder and will also lower the risk of infections”.